News Details (Posted: March 8, 2010):

Vote on Kabuki Syndrome Race Car!!!

Full Description:

My daughter Madeline has this syndrome. Please vote and help spread the word about Kabuki Syndrome. There are only about 350 Kabuki Kids world wide. It only takes a second. Thanks!

Karin

Hi All, My name is Jodi our daughter Jada Diane is 6 years old with KS I need your help. Toyota has a contest to create a race car for Nascar the winning design race car will be shown on National TV at the All Star Race in May. If I win then Kabuki Syndrome will be out there for all to know about it!! I not only did this for my daughter but for all the children with this Syndrome I would one day love for this syndrome to be as well known as Autisum!! So I need you all to go to the this link http://www.sponsafier.com/share/54396 and vote for Jada's race car called Kabuki Syndrome! I only have 15 days to get as many votes as possible to win the more votes I get in the 15 days the better chances of me winning! I feel it is my responsibility as a Mother to my daughter to make people aware of Kabuki Syndrome! You all know as well as I do that NO ONE has ever heard of it!! I know no other way to get Kabuki out there than to do this! Its a start and just maybe it will be as big as Autisum Awareness! Wouldn't that be awesome!! Thank you Kabuki Family & friends! Hugs Jodi,Dino & Jada

Please vote everyday if you can. This is for my daughter Madeline's rare syndrome and it needs to be known so please help. There are only about 350 Kabuki Kids WORLD WIDE! Please take a moment to vote until the end of the competition. You can read about Kabuki in about an hour. Maybe someone you know has a child with this and the parents don't know it yet. Madeline was 3 1/2 when she was "clinically" diagnosed and I was so relieved to have an answer to all her problems. Thanks so much!

Karin, Kabuki Mom to Madeline 8 y/o